‘Tis the season to give thanks by giving back! For Giving Tuesday, we’ve compiled a list of nonprofits you can donate to that are doing amazing work in the celiac and food allergy communities. These nonprofits work on many fronts (education, advocacy, research, and more) for the betterment of the celiac and food allergy communities.
“Beyond Celiac unites with patients and partners to drive diagnosis, advance research, and accelerate the discovery of new treatments and a cure.”
Reduce the time to diagnosis.
According to their website, 83% of people remain undiagnosed or misdiagnosed. Beyond Celiac hopes to reduce this number by identifying people who are at-risk and providing them with education and early testing.
Help the community to live better, longer
Beyond Celiac has a fantastic website that has a lot of great free information for patients, caregivers, healthcare providers, and foodservice professionals. You can find helpful articles, toolkits, monthly webinars, educational videos, and more on their website.
Accelerate research and forge the pathways to a cure
Beyond Celiac’s research initiatives are focused on securing an early diagnosis and improving the quality of life for individuals living with celiac’s disease. They are particularly dedicated to empowering the celiac disease patient community and helping them realize their important role in advancing the field. You can learn more about Beyond Celiac’s research here.
“To educate, advocate, and raise awareness for all individuals and families affected by food allergies and life threatening anaphylaxis.”
Educate through outreach, ongoing training, and support for public and professional communities
FAACT works to educate the the public about food allergies and anaphylaxis by offering trainings and summits, conducting community and professional partnerships, and publishing informative resources on online spaces.
For the food allergy and anaphylaxis community FAACT offers helpful resources (that cover everything from traveling tips to info on bullying), as well as great programs such as a teen retreat and allergy/anaphylaxis safe day camp for kids.
Advocacy through education and government relations
FAACT helps food-allergic individuals be their own advocate by educating and informing them of their legal rights. Their website has a substantial list of resources that you can find here.
FAACT is also involved in government relations and will help advocate for state legislation mandating every school have a supply of emergency epinephrine.
“To improve the quality of life and the health of individuals with food allergies, and to provide them hope through the promise of new treatments.”
Research that aids the development of new therapies and provides hope for effective treatments
FARE is the world’s largest private source of funding for food allergy research. Along with providing numerous research grants, FARE also has created a FARE clinical network and a FARE patient registry to foster a better connected community.
Education that helps further inform and spread awareness about food allergies
FARE offers resources and tools to help educate individuals with food allergies and the community around them. They also head up programs to help raise awareness, such as the well known Teal Pumpkin Project that promotes the inclusion of all trick-or-treaters.
“Celiac Disease Foundation drives diagnosis, treatment, and a cure to improve the quality of life for all people affected by celiac disease and non-celiac gluten / wheat sensitivity.”
The Celiac Disease Foundation has 3 main research initiatives:
1. Collaborate with a wide range of medical and research professionals in order to broaden research output, deepen the understanding of celiac disease, and work towards a cure.
2. Provide funding for researchers in order to deepen knowledge of the causes, progression, and consequences of celiac disease.
3. Help facilitate patient-centered research by maintaining iCureCeliac® (the largest celiac disease patient registry) and driving participation in clinical trials, studies, and focus groups.
Education for patients and healthcare providers
The Celiac Disease Foundation has created innovative digital tools for healthcare professionals, patients, and family members. A few of their notable initiatives are the NASPGHAN Clinical Guide for Pediatric Celiac Disease, the Symptoms Checklist, and the Gluten-Free Marketplace iOS and Android.
The Celiac Disease Foundation also works with national partners and government agencies to make research findings more accessible and usable for celiac disease patients and their caregivers.
Public policy advocacy
The Celiac Disease Foundation has developed a national network of Celiac Disease Patient Advocates, that they recruit and train themselves. These advocates are active partners who engage in the research process and help give a voice to the 3 million Americans diagnosed with celiacs disease.
The Celiac Disease Foundation also works to educate policymakers about unmet needs, and collaborates with federal and state policy makers on program development.